Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders

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dc.contributor.authorDaniels, Amy M.
dc.contributor.authorComo, Ariel
dc.contributor.authorHerguner, Sabri
dc.contributor.authorKostadinova, Krasimira
dc.contributor.authorStosic, Jasmina
dc.contributor.authorShih, Andy
dc.date.accessioned2024-02-23T13:56:11Z
dc.date.available2024-02-23T13:56:11Z
dc.date.issued2017
dc.departmentNEÜen_US
dc.description.abstractThe aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs.en_US
dc.description.sponsorshipAutism Speaksen_US
dc.description.sponsorshipThis study was funded in part by Autism Speaks (grant number not applicable); minimal financial support was provided by Autism Speaks to some participating countries to facilitate survey translation and data collection.en_US
dc.identifier.doi10.1007/s10803-017-3145-x
dc.identifier.endpage2325en_US
dc.identifier.issn0162-3257
dc.identifier.issn1573-3432
dc.identifier.issue8en_US
dc.identifier.pmid28480480en_US
dc.identifier.scopus2-s2.0-85018445757en_US
dc.identifier.scopusqualityQ1en_US
dc.identifier.startpage2314en_US
dc.identifier.urihttps://doi.org/10.1007/s10803-017-3145-x
dc.identifier.urihttps://hdl.handle.net/20.500.12452/11118
dc.identifier.volume47en_US
dc.identifier.wosWOS:000405720900003en_US
dc.identifier.wosqualityQ1en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherSpringer/Plenum Publishersen_US
dc.relation.ispartofJournal Of Autism And Developmental Disordersen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectSoutheast Europeen_US
dc.subjectCaregiversen_US
dc.subjectDiagnosisen_US
dc.subjectServicesen_US
dc.subjectStigmaen_US
dc.titleAutism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disordersen_US
dc.typeArticleen_US

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