Psychological status of mothers of children with cystic fibrosis and primary ciliary dyskinesia

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dc.contributor.authorGursoy, Tugba Ramasli
dc.contributor.authorEyuboglu, Tugba Sismanlar
dc.contributor.authorAslan, Ayse T.
dc.contributor.authorEmiralioglu, Nagehan
dc.contributor.authorPekcan, Sevgi
dc.contributor.authorBuyukkaya, Eda Z.
dc.contributor.authorHangul, Melih
dc.date.accessioned2024-02-23T13:03:31Z
dc.date.available2024-02-23T13:03:31Z
dc.date.issued2022
dc.departmentNEÜen_US
dc.description.abstractObjectives We aimed to investigate depression, burnout, attitude, and burden of caregivers of children with cystic fibrosis (CF), and especially caregivers of children with primary ciliary dyskinesia (PCD) due to limited number of studies on this topic, and to compare them according to their children's clinical status. Methods Clinical features and demographic data of children and their families were asked from caregivers in four pediatric pulmonology centers. Beck Depression Inventory, Maslach Burnout Inventory, Zarit Caregiver Burden Scale, and Parental Attitude Research Instrument were administered to caregivers in both groups. Results were compared between the two groups. Results In total, 131 children with CF and 39 with PCD and their caregivers were involved in the study. All primary caregivers were mothers in both groups. Depression, burnout, and burden scores of mothers of children with CF were significantly higher than mothers of children with PCD (p = 0.017, p = 0.024, p = 0.038, respectively). Burnout was higher in both CF and PCD groups with low family income (p = 0.022, p = 0.034). Number of hospital visits in the previous 6 months was correlated with burnout in both CF and PCD groups (r = 0.207, p = 0.034; r = 0.352, p = 0.044). Conclusions Although mothers with children with CF have higher levels of depression, burnout, burden, and negative attitudes toward children than mothers with children with PCD, these are also significantly high in mothers with children with PCD. Psychological problems of mothers of children with CF and PCD may increase with frequent hospital visits, hospitalizations, low family income, number of children, and chronic disease in another child.en_US
dc.identifier.doi10.1002/ppul.26080
dc.identifier.endpage2673en_US
dc.identifier.issn8755-6863
dc.identifier.issn1099-0496
dc.identifier.issue11en_US
dc.identifier.pmid35833227en_US
dc.identifier.scopus2-s2.0-85134519544en_US
dc.identifier.scopusqualityQ1en_US
dc.identifier.startpage2665en_US
dc.identifier.urihttps://doi.org/10.1002/ppul.26080
dc.identifier.urihttps://hdl.handle.net/20.500.12452/10652
dc.identifier.volume57en_US
dc.identifier.wosWOS:000828275400001en_US
dc.identifier.wosqualityQ2en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakScopusen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherWileyen_US
dc.relation.ispartofPediatric Pulmonologyen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectChildrenen_US
dc.subjectCystic Fibrosisen_US
dc.subjectMothersen_US
dc.subjectPrimary Ciliary Dyskinesiaen_US
dc.subjectPsychologyen_US
dc.titlePsychological status of mothers of children with cystic fibrosis and primary ciliary dyskinesiaen_US
dc.typeArticleen_US

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