The Experiences of Children with Primary Immunodeficiency Who Receive Immunoglobulin Subcutaneously Instead of Intravenously

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dc.contributor.authorKose, Semra
dc.contributor.authorSabetsarvestani, Raheleh
dc.contributor.authorGeckil, Emine
dc.contributor.authorKaleci, Elanur
dc.contributor.authorDonmez, Hatice
dc.date.accessioned2024-02-23T14:13:23Z
dc.date.available2024-02-23T14:13:23Z
dc.date.issued2024
dc.departmentNEÜen_US
dc.description.abstractBackground: Children with primary immunodeficiency disorder have begun receiving subcutaneous immunoglobulin (SCIg) instead of intravenous immunoglobulin (IVIg). So, we aim to explore the experiences of primary immunodeficiency children with regard to receiving SCIg instead of IVIg. Method: We adopted a phenomenological approach in 2022 in Tur-key using semi-structured interviews. We recruited 15 participants using the purposive sampling method. Results: The main theme was the sweetness and bitterness of liv-ing with SCIg. The first subtheme was sweetness (sense of free-dom, having a normal life, saving time, ease of use, and feeling better). The second subtheme was bitterness (worries about taking responsibility for injection, impaired body image due to abdominal edema, and minimal tolerable complications). Discussion: The results show these children had more sweet expe-riences than bitter ones. Being flexible in choosing a method, teach-ing patients to apply it correctly, and providing enough time to cope are as reasons for this.en_US
dc.identifier.doi10.1016/j.pedhc.2023.08.002
dc.identifier.endpage20en_US
dc.identifier.issn0891-5245
dc.identifier.issn1532-656X
dc.identifier.issue1en_US
dc.identifier.pmid37702646en_US
dc.identifier.scopusqualityQ2en_US
dc.identifier.startpage13en_US
dc.identifier.urihttps://doi.org/10.1016/j.pedhc.2023.08.002
dc.identifier.urihttps://hdl.handle.net/20.500.12452/12417
dc.identifier.volume38en_US
dc.identifier.wosWOS:001140837100001en_US
dc.indekslendigikaynakWeb of Scienceen_US
dc.indekslendigikaynakPubMeden_US
dc.language.isoenen_US
dc.publisherElsevier Science Incen_US
dc.relation.ispartofJournal Of Pediatric Health Careen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/closedAccessen_US
dc.subjectIvigen_US
dc.subjectScigen_US
dc.subjectNursingen_US
dc.subjectPrimary Immunodeficiency Diseaseen_US
dc.subjectChildrenen_US
dc.subjectPhenomenologyen_US
dc.titleThe Experiences of Children with Primary Immunodeficiency Who Receive Immunoglobulin Subcutaneously Instead of Intravenouslyen_US
dc.typeArticleen_US

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