Süpüratif akciğer hastalığı nedeniyle takip ve tedavi edilen çocuklarda ilaç uyumu ile yaşam kalitesinin ve uyumsuzluğa yol açan faktörlerin değerlendirilmesi
Yükleniyor...
Dosyalar
Tarih
2023
Yazarlar
Dergi Başlığı
Dergi ISSN
Cilt Başlığı
Yayıncı
Necmettin Erbakan Üniversitesi Sağlık Bilimleri Enstitüsü
Erişim Hakkı
info:eu-repo/semantics/embargoedAccess
Özet
Necmettin Erbakan Üniversitesi Tıp Fakültesi Çocuk Göğüs Hastalıkları Kliniğinde takipte olan ve kontrol için başvuran süpüratif akciğer hastalığı tanısı almış çocukların, doktorlarının verdiği tedavilere uyum oranları ile yaşam kalitelerinin araştırılması ve tedavi uyumlarını etkileyen ve engelleyen faktörlerin değerlendirilmesi amaçlanarak 8-12 yaş arası çocuklar, 13-18 yaş arası ergenler ve aileleriyle bir araştırma yapıldı. Toplamda 430 kişi olmak üzere, 215 hasta ve 215 ebeveyniyle görüşüldü. Çalışmanın detayları hastalara ve ebeveynlere anlatılarak gönüllü onam formu imzalatıldı. 8-12 yaş çocuklar ve 13-18 yaş ergenler için geçerlik ve güvenirlik çalışması yapılmış olan genel yaşam kalitesi ölçeği çocuk/ergen değerlendirme formu ve ebeveyn formu dolduruldu. Ayrıca ebeveynler için de yaşam kalitesi anketi ve çocuklarda ilaç uyumu, yaşam kalitesi ve uyumsuzluğa yol açan faktörlerin değerlendirilmesi için hazırlanan form uygulandı. Bu formlar doğrultusunda uygun istatiksel analizler yapılarak sonuçlar değerlendirildi. Ebeveynlerin verdikleri cevaplara göre çocukların %58,6'sı ilaçlarını düzenli kullanmaktadır; 8-12 ve 13-18 yaşındaki çocuklar karşılaştırıldığında, 13-18 yaş grubunda düzenli ilaç kullananların, ilaçları ve dozlarını bilenlerin önemli oranda daha yüksek olduğu bulunmuştur. Hastaların en önemli ilaç kullanmama nedeni ilacın kokusunu ve tadını sevmemesi; diğer iki en sık neden unutma ve sosyal hayatı etkilemesidir. Ebeveynlerin yaklaşık %88'i, çocukların her gün ilaç alması dolayısıyla üzüldüğünü, ayrıca çocukların günlük aktivitelerini ve hayat kalitesini etkilediğini ve yaklaşık %45'i arkadaşlarının ilaç alması konusunda düşüncelerini önemsediğini ifade etmiştir. Çocuk ve ebeveyne göre çocuk yaşam kalite puanları sosyodemografik özelliklere göre karşılaştırıldığında, aile tipinin önemli olduğu, çekirdek ailelerde sağlık kurumu, doktor/hemşireden ilaç ve kullanımları hakkında bilgi almanın daha fazla olduğu ve çocukların yaşam kalitesinin daha yüksek olduğu belirlenmiştir. Gelir durumu yüksek olanlarda ilaçlar hakkında yeterli bilgi alanların, ilaçları ve dozlarını bilenlerin oranının ve yaşam kalitesinin anlamlı derecede yüksek olduğu görülmüştür. 8-12 yaş çocuk ve ebeveyne göre çocuk yaşam kalite puanları ilaç uyumu özelliklerine göre karşılaştırıldığında, bilgi kaynağı doktor/hemşire/sağlık kuruluşu olanlarda çocuk yaşam kalitesi puanlarının daha yüksek olduğu bulunmuştur. 13-18 yaş için tedavide sorun yaşaması durumunda doktora danışanlarda ve bilgi kaynağı doktor/sağlık kuruluşu olanlarda yaşam kalitesi puanlarının daha yüksek olduğu sonucuna ulaşılmıştır. Sonuç olarak, süpüratif akciğer hastalığında ilaç kullanan çocuklar ve ailelerinde yaş, gelir, aile tipi gibi sosyodemografik özellikler ve bilgi kaynakları ilaç uyumu ve yaşam kalitesi üzerinde etki gösterebilmektedir. Ayrıca, sürekli ilaç kullanımı çocukların günlük aktivitelerini ve yaşam kalitesini etkilemektedir.
The study was conducted with children aged 8-12 years, adolescents aged 13-18 years and their families to investigate the compliance rates and quality of life of children diagnosed with suppurative lung disease who were being followed up in the Necmettin Erbakan University, Faculty of Medicine, Pediatric Chest Diseases Clinic and who were admitted for control, and to evaluate the factors affecting and preventing their treatment compliance. A total of 430 people, 215 patients and 215 parents were interviewed. The details of the study were explained to the patients and parents and a voluntary consent form was signed. The child/adolescent assessment form and parent form of the general quality of life scale, for which validity and reliability studies were conducted for children aged 8-12 years and adolescents aged 13-18 years, were completed. In addition, a quality of life questionnaire and a form prepared for the evaluation of medication adherence, quality of life and factors leading to nonadherence in children were applied for parents. In accordance with these forms, appropriate statistical analyses were performed and the results were evaluated. According to the answers given by the parents, 58.6% of the children used their medications regularly; when children aged 8-12 and 13-18 years were compared, it was found that those who used medications regularly and knew the medications and dosages were significantly higher in the 13-18 age group. The most important reason for not taking medication was not liking the smell and taste of the medication; the other two most common reasons were forgetting and interference with social life. Approximately 88% of the parents stated that their children felt upset because they were taking medication every day and that it affected their daily activities and quality of life, and approximately 45% of the parents said that their children cared what their friends thought about them taking medication. When child quality of life scores by child and parent were compared according to sociodemographic characteristics, it was found that family type was important, receiving information about medicines and their use from the health institution, doctor/nurse was more common in nuclear families and children's quality of life was higher. It was observed that the rate of those who received adequate information about medicines, knew the medicines and their dosages and quality of life was significantly higher in those with higher income. When the quality of life scores of children aged 8-12 years were compared according to the characteristics of medication adherence according to children and parents, it was found that the quality of life scores of children were higher in those whose source of information was doctor/nurse/health institution. For 13-18 years of age, it was concluded that quality of life scores were higher in those who consulted a doctor in case of treatment problems and in those whose source of information was a doctor/health care provider. In conclusion, sociodemographic characteristics such as age, income, family type and information sources may have an effect on medication adherence and quality of life in children and their families who use medication for suppurative lung disease. Moreover, continuous medication use affects children's daily activities and quality of life.
The study was conducted with children aged 8-12 years, adolescents aged 13-18 years and their families to investigate the compliance rates and quality of life of children diagnosed with suppurative lung disease who were being followed up in the Necmettin Erbakan University, Faculty of Medicine, Pediatric Chest Diseases Clinic and who were admitted for control, and to evaluate the factors affecting and preventing their treatment compliance. A total of 430 people, 215 patients and 215 parents were interviewed. The details of the study were explained to the patients and parents and a voluntary consent form was signed. The child/adolescent assessment form and parent form of the general quality of life scale, for which validity and reliability studies were conducted for children aged 8-12 years and adolescents aged 13-18 years, were completed. In addition, a quality of life questionnaire and a form prepared for the evaluation of medication adherence, quality of life and factors leading to nonadherence in children were applied for parents. In accordance with these forms, appropriate statistical analyses were performed and the results were evaluated. According to the answers given by the parents, 58.6% of the children used their medications regularly; when children aged 8-12 and 13-18 years were compared, it was found that those who used medications regularly and knew the medications and dosages were significantly higher in the 13-18 age group. The most important reason for not taking medication was not liking the smell and taste of the medication; the other two most common reasons were forgetting and interference with social life. Approximately 88% of the parents stated that their children felt upset because they were taking medication every day and that it affected their daily activities and quality of life, and approximately 45% of the parents said that their children cared what their friends thought about them taking medication. When child quality of life scores by child and parent were compared according to sociodemographic characteristics, it was found that family type was important, receiving information about medicines and their use from the health institution, doctor/nurse was more common in nuclear families and children's quality of life was higher. It was observed that the rate of those who received adequate information about medicines, knew the medicines and their dosages and quality of life was significantly higher in those with higher income. When the quality of life scores of children aged 8-12 years were compared according to the characteristics of medication adherence according to children and parents, it was found that the quality of life scores of children were higher in those whose source of information was doctor/nurse/health institution. For 13-18 years of age, it was concluded that quality of life scores were higher in those who consulted a doctor in case of treatment problems and in those whose source of information was a doctor/health care provider. In conclusion, sociodemographic characteristics such as age, income, family type and information sources may have an effect on medication adherence and quality of life in children and their families who use medication for suppurative lung disease. Moreover, continuous medication use affects children's daily activities and quality of life.
Açıklama
Yüksek Lisans Tezi
Anahtar Kelimeler
Bronşektazi, Çocuklarda İlaç Uyumu, Çocuklarda Yaşam Kalitesi, Kistik Fibrozis, Süpüratif Akciğer Hastalığı, Bronchiectasis, Medication Adherence in Children, Quality of Life in Children, Cystic Fibrosis, Suppurative Lung Disease
Kaynak
WoS Q Değeri
Scopus Q Değeri
Cilt
Sayı
Künye
Yaşar, M. (2023). Süpüratif akciğer hastalığı nedeniyle takip ve tedavi edilen çocuklarda ilaç uyumu ile yaşam kalitesinin ve uyumsuzluğa yol açan faktörlerin değerlendirilmesi. (Yayımlanmamış yüksek lisans tezi). Necmettin Erbakan Üniversitesi, Sağlık Bilimleri Enstitüsü Tıbbi Farmakoloji Anabilim Dalı, Konya.
