Dezavantajlı bireyler ve ailelerinin gündelik hayatları: Fenilketonürili aileler üzerine bir inceleme
Yükleniyor...
Dosyalar
Tarih
2022
Yazarlar
Dergi Başlığı
Dergi ISSN
Cilt Başlığı
Yayıncı
Necmettin Erbakan Üniversitesi Sosyal Bilimler Enstitüsü
Erişim Hakkı
info:eu-repo/semantics/openAccess
Özet
Dezavantajlı bireyler hayatlarının sosyal, ekonomik gibi bir alanda ya da
birden fazla alanda sorun yaşayan bireyleri ifade etmektedir. Yoksullar,
çocuklar, kadınlar, göçmenler ve engelliler gibi bireyler bulundukları topluma
göre dezavantajlı birey olarak kabul edilmektedir. Aile bireyin ilk iletişim
kurduğu, ilk eğitimini aldığı temel bir kurumdur. Dolayısıyla bireyin toplumun
kültürünü, değerlerini öğrenmesinde aile önemli bir faktör olmaktadır. Aile
bireyi birçok alanda etkilerken özel gereksinimli bir bireyin aileye katılması da
aileyi etkilemektedir. Ailenin özel gereksinimli bireye göre sosyal yaşamını,
ekonomik durumunu değiştirmektedir.
Çalışmanın amacı aileye katılan özel gereksinimli bireylerden
fenilketonürili bireyin ailenin yaşamına nasıl etkide bulunduğu anlamaktır.
Amaca uygun olarak fenilketonürili aile bireyleriyle görüşmeler yapılmıştır.
Görüşmeler Konya’daki fenilketonürili aile bireyleri ve fenilketonürili bireylerle
yapılmıştır. 9 tane anne, 7 tane baba ve 5 tane de fenilketonürili birey olmak
üzere toplamda 21 kişiyle görüşme gerçekleştirilmiştir. Görüşmeler sonucunda
elde edilen bulgular analiz edilmiştir. Analiz sonucunda ailenin fenilketonürili
bireye göre sosyal ilişkilerini düzenlediği, aile bireylerinin ekonomik durumuna
da etki ettiği ortaya çıkmıştır.
Disadvantaged individuals refer to individuals who have problems in one area of their life, such as social, economic, or in more than one area. Individuals such as the poor, children, women, immigrants and the disabled are considered as disadvantaged individuals according to the society they live in. The family is a basic institution where the individual communicates first and receives his/her first education. Therefore, the family is an important factor in learning the culture and values of the society. While the family affects the individual in many areas, the participation of a person with special needs in the family also affects the family. It changes the social life and economic situation of the family according to the individual with special needs. The aim of the study is to understand how the individual with phenylketonuria, one of the individuals with special needs who join the family, affects the life of the family. In accordance with the purpose, interviews were conducted with family members with phenylketonuria. Interviews were conducted with family members with phenylketonuria and individuals with phenylketonuria in Konya. A total of 21 people were interviewed, including 9 mothers, 7 fathers, and 5 individuals with phenylketonuria. The findings obtained as a result of the interviews were analyzed. As a result of the analysis, it was revealed that the family regulates social relations according to the individual with phenylketonuria, and it also affects the economic status of family members.
Disadvantaged individuals refer to individuals who have problems in one area of their life, such as social, economic, or in more than one area. Individuals such as the poor, children, women, immigrants and the disabled are considered as disadvantaged individuals according to the society they live in. The family is a basic institution where the individual communicates first and receives his/her first education. Therefore, the family is an important factor in learning the culture and values of the society. While the family affects the individual in many areas, the participation of a person with special needs in the family also affects the family. It changes the social life and economic situation of the family according to the individual with special needs. The aim of the study is to understand how the individual with phenylketonuria, one of the individuals with special needs who join the family, affects the life of the family. In accordance with the purpose, interviews were conducted with family members with phenylketonuria. Interviews were conducted with family members with phenylketonuria and individuals with phenylketonuria in Konya. A total of 21 people were interviewed, including 9 mothers, 7 fathers, and 5 individuals with phenylketonuria. The findings obtained as a result of the interviews were analyzed. As a result of the analysis, it was revealed that the family regulates social relations according to the individual with phenylketonuria, and it also affects the economic status of family members.
Açıklama
Yüksek Lisans Tezi
Anahtar Kelimeler
Dezavantajlılık, Dezavantajlı gruplar, Gündelik hayat, Fenilketonüri hastalığı, Aile, Disadvantage, Disadvantaged groups, Everyday life, Phenylketonuria disease, Family
Kaynak
WoS Q Değeri
Scopus Q Değeri
Cilt
Sayı
Künye
Akçay, G. A. (2022). Dezavantajlı bireyler ve ailelerinin gündelik hayatları: Fenilketonürili aileler üzerine bir inceleme. (Yayımlanmamış yüksek lisans tezi). Necmettin Erbakan Üniversitesi, Sosyal Bilimler Enstitüsü, Sosyoloji Ana Bilim Dalı, Konya.
